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Pain News Network

I heard about this on the Science Friday show on NPR. Of course they also referenced the popularly current war against opiates. So then I was thinking, that’s great now every doctor who listens to NPR is going to lump this on top of their growing hysteria to avoid supporting chronic pain patients with the one drug category that does help. I think I’m going crazy the more I am treated as a criminal on 30 mandatory parole and piss tests. Opiates not perfect, but learn to understand the patient and monitor them. It doesn’t have to be the Spanish Inquisition.

painnewsnetwork.org

but I was wrong.  Will the persecution never end?

Medical personnel stress over treatment choices < (is less than) Pain and Pain related experience of Chronic pain patent.

Why would a pharmacist think their stress over filling a new earlier prescription written by the same doctor for the same patient equate to what the Pain Criminal must live with?

I do know the system is insane and that everyone in the treatment chain is at times over scrutinized.  I do not go to the doctor or to the pharmacy to get drugs.  I have been trained to feel humiliated that the drugs that help me are so dangerous and need a government to monitor the access to them constantly.

I realize when someone can have a bad day pushing papers around and their boss or even the FDA might get upset but spare me your trauma.   I can assure you your not feeling anything like I do.  I’m the one in daily trauma when you forget I’m just trying to kill pain and live with my pain.

This system is wrong and needs to be reformed to handle patients with chronic problems as priority.

 

arrrggghhhh

On July 19 I had a pretty crummy day with a new ‘severe’ phantom pain.  crazy life.

Amazing what horrible things humans can live through.

Not totally a loss, the day after mostly the pains went back to normal.

Everyone loves all the amazing artificial legs.  It’s almost like people believe they are better than an actual human leg.

I’m sure some of the amazing advancements are exactly amazing advancements.  Sadly an amazing bionic hand nor any of the super bionic legs, nor blade fake feet hold much use for me.

I have a hip-disarticulation amputation. Which actually upon thinking about it, reads like something I don’t have more than something I do have.    When I had my osteogenic sarcoma it was in my femur.  So the orthopedic surgeon removed my entire femur to do the best to ensure the cancer was entirely removed.  Without the femur  means I have no hip joint or anything lower.  Well except the Fantomsmärta (phantom pain) of course.

So I get around on crutches instead of a full leg prothesis.  Despite advancements, minor in my opinion, the leg option is more cumbersome and uncomfortable than crutches.

Now I just need to get a much better permanent handgrip solution.  But more on crutches another day.